So, in March I had bloodwork ran that showed my cyclosporine levels had dropped waayyy down, and I was put on more cyclorsporine. Now, what you need to know about this drug is that it has some serious side effects. Some of the more minor ones involve leg cramps, mood/mental alterations, and insomnia. So, off we went with an increase of 25 mg per day over my usual 100 mg .
Now, I've done this before, and I know when I feel worse. And sure enough, the last three weeks have been hell. Between not going to sleep, waking up in the middle of the night with major leg cramps, and having some really wierd dreams and thoughts, I had a feeling that the level had gotten too high.
Well, yesterday's reading seemed to indicate it. What should be around 100-120 was 384, but since it had gone up so much the docs thought I'd taken my meds before I had bloodwork ran. Now, come on...how many of these labs have I had done in the last 5 years? Only once did that happen and it was because nobody told me they were going to do bloodwork.
So, today I had to go back and have it ran again....this time it was 184 and they were telling me to keep the same amount going. Most of the time, I don't argue but this time I had to. So, yet another run to SFH for bloodwork and clinic on the 8th...and hopefully somebody will finally believe me. I don't think I can keep up with these side effects much longer.
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